July is sarcoma awareness month. Let's be aware. Sarcoma accounts for 1% of all adult cancers and 15% of all pediatric cancers. I am that 1% and with that my type of sarcoma is even more rare. They figure about 300 new cases have been reported of my sarcoma in the last 40 years, isn't that nuts?! With that, there is no chemo regimen or any real treatment plan assigned to this disease. Thank heavens for great doctors who study and read who make that effort to keep me from being yet another statistic.
Almost 3 years ago my life was forever changed when my amazing doctor held my hand as I woke up from anesthesia and told me the preliminary results showed clear cell sarcoma. He knew that at Shands UF we have one of the best pathologist in the country and that honestly his preliminary would be right, we both knew that. I had a beautiful 14 month old baby at home. This was going to fuck my life up. I spent too many hours on the computer researching this shit and crying myself to sleep.
Statistics blow, there is a 60% chance I'll still be alive 2 years from now (5 years out from diagnosis), 30% chance in 7 years and 15% chance in 17 years.
Until that day comes I'll love my baby, love my hubby, my family and my life. Be grateful for the time I'm here on this Earth and hold my breath each time I head in for a surveillance scan.